The final chapter

My beautiful sister, Deborah Jeneane (Taylor) Sticher, passed away this morning at 6 a.m.

My thanks to all those family and friends who embraced us with their love and prayers through this difficult time. A special thanks to the staff at Atlanta Hospice who showered my sister with comfort and care during her final weeks, days and hours. Not only did they do an amazing job, but they came to genuinely love and care for her. May I suggest anyone looking for a worth cause to which to donate, consider this fine group.

I don't know that I'll ever be able to discuss these last few days with anyone but my sisters who were there with me in Debbie's last hours, and although I miss her terribly I have to be comforted by the fact there are no more tubes and pills and pain. She was sweet and stubborn and God better be prepared for some head buttin' when Debbie gets to town.

Guilt trip to the pity party

I'm feeling awful that I can't be with Debbie today. Jackson is sick so he is sequestered on the couch with medicine, chicken soup, liquids and the remote control.

DeAnn is with her now. Ray never came back last night. His son said Ray fell asleep on the way home (he sounded out of it to me earlier...probably from the xanax) and his son was too sleepy to bring him back and Ray's parents couldn't. We'll see if he shows up today. Debbie's son, Dustin is also supposed to come visit.

Sonny stayed with her last night and DeAnn told me he was an absolute angel. He puts on a tough act, but he's such a big hearted guy. Debbie's getting weaker and she liked having Sonny there because when she needed to get back in bed he could lift her and put her in rather than the laborious and sometimes painful moving and tugging we girls have to do. I can so clearly see the image in my mind of my brother holding her.

Sonny has had to sort of distance himself from all of this thus far, for some very good reasons. But when you need that guy, he is there. We all decided we cannot count on Ray. Sonny is planning on either staying with Debbie and leaving from work from there every morning or finding someone who can stay with her. DeAnn and I will be going by every day after work and staying as late as we can. Tina is already making plans to come back here as soon as possible.

I stop by the chapel every time I enter and leave the hospice. I used to give thanks for another day with Debbie and to selfishly ask for one more day. Now I just ask that she be pain free.

All prayers appreciated.

Next post: The final chapter

Where do I start and don't get me started

Note to self: reintroduce yourself to husband this evening.

Every evening after Glenn gets home, I head over to the hospice, or on the days he's off, I head over directly after work. DeAnn and I talked and realized we can only be there as much as we can (which in our case is every spare moment) but that between the two of us there is simply no way we can be there 24 hours a day, 7 days a week. Of course, that means our new garments are made of guilt, but what can we do?

Tina came up from South Carolina and spent Thursday night with Debbie. I joined her on Friday evening. I will cherish every moment we spent together. Deb's pump now has IV morphine in it. It gives her pain medication continuously and she can also push a button every 8 minutes for a "booster." When I say "she" can push it, I mean we. She's simply too weak. So we are in fact pushing it every 8 minutes and her pain fluctuates between a 7 and a 9 on a scale of 1-10. Which means it still sucks.

Tina and I got our pjs on and settled in for the night. The nurses came in and arranged her pillows and turned her on her side so she could sleep more comfortably. Debbie loved it. Mason, the cute male nurse called us the "yoohoo sisters" because Tina and I were yakking during the pillow arranging session and when he needed our attention he shouted out, "Yoohoo! Sisters!" Tina was exhausted from being up most of Thursday evening and although she made me take the more comfortable of the two recliners, she was able to get some rest Friday evening. I woke up every 60 minutes on cue and quietly got up to give Deb another shot from her pump to help with the pain as she slept.

We had turned in around 11:30 and Debbie woke up at 2:30 needing to go to the restroom. In spite of my previous post, we are still doing this which is a good thing since it gets her up and moving about. After, when she was washing her hands she quietly said to me, "I wish this would just come." Which I took to mean the end. DeAnn had me read this 20 plus page printout the doctor had left called "crossing the creek" which explains the death process and the various stages and what the body will do to make itself comfortable. It made a lot of sense to me and in a wacky way made me realize all this was a natural (albeit sad) progression.

I told Debbie she was in charge of that (when I read the printout it said terminal patients often hold on if they have "unfinished business"), to which Debbie replied she was in charge of nothing. "I'm not in charge of the cancer. I'm not in charge of the pain." I told her how sad I was this horrible disease had ravaged her body but that her mind and soul had not been touched.

She fell asleep again around 4 am and slept until 7. Tina slept another couple of hours and Debbie actually had a good morning (in this world of the new "normal") and had a little coffee as well as some grits. When DeAnn arrived Tina and I headed for High Falls, which is where Debbie lived until she came to DeAnn's, and then the hospital, and then the hospice, and then back to DeAnn's and now back to the hospice. Whew!

Debbie is the shutterbug in our family and she has a bar counter full of photographs at Tony's (the stepfather) at the lake at High Falls. Tina thought she could scan them all into a digital frame for Debbie so she could enjoy her photos at the hospice. Time was something of the essence as the sisters told me that the nurse practitioner at the hospice told them Debbie could pass away this weekend. I may be naive, but after the relatively good morning she had and the fact that she is still getting up and moving (though slowly and with pain) and still eating and drinking (though little) I just don't see that happening.

Tina ended up shooting the photos with her digital camera while I talked with Tony. He's 95, a little hard of hearing and still has a fairly heavy accent from his native San Salvador. I told him Debbie wasn't coming home and that she was going to die and that she was worried about him. She's worried the "vultures" as she calls them, will try to trick him out of his home and money. I told him not to give any money to Ray and that I would come by and check on him every other week, get him money orders for his bills and take him to the store. The main thing is I can tell he is very, very lonely without Debbie there and would appreciate the company.

It was nice having that time with Tina but it was incredibly painful to go in Debbie's room and see her still unmade bed from when Tina and DeAnn rescued her when she was home alone after being released from the hospital in Macon. It hurt to look at all the photos of Debbie, many when she was younger. She was beautiful and had long, long hair and such a beautiful smile. It hurts to know what this disease has taken from her. Those beautiful blue eyes are still there, though and they will pierce you to your soul.

My brother Sonny came to watch over Deb tonight. He was on a mission to find out her wishes for burial, etc and the sisters and I are praying he exercises some kindness and discretion. We think he will. I called later to see if he was doing okay and Ray and his son Joseph were there. I wanted to know if Ray was planning on showing up any time soon. Debbie doesn't like being alone and the reality is the rest of us have to work on Monday. I was taking to Ray and I know I was being cold and abrupt but when he started in on his problems I just felt as though I would vomit if I heard another word from his mouth so I hung up the phone.

He is an addict. He has addict behaviors. He lies, he steals and he tries to cover his tracks. He is a con artist and though his mother is a sweet woman, I think he cons her most of all. I no longer trust him and I don't think we can depend on him. I will be civil if that is what Debbie wants. If she asks him to be there I'm sure he will. No one can refuse those blue eyes. But my point and the reason I'm so pissed, is that she shouldn't have to ask.

Next post: Guilt trip to the pity party

What do we do now?

Has it really been over a week since I last posted??

So much has happened...good and bad. We watched Debbie for several days and her blood pressure was good and she was responding well to the time release oral morphine. She was using the pain pump infrequently so we thought there was a chance she could go home. Much to our suprise the Doctor agreed, so the wheels were put in motion to make that happen. I spent Friday night with her and got her up and dressed. I held it together pretty well, mainly because we were all so frigging happy she was going "home", but when I saw her sitting in that stretcher to be moved to the ambulance, I just lost it.

Debbie looks like a baby bird right now. She's so frail and she has those little wisps of black hair coming in. She's sleeping a lot but when she opens those blue eyes and gives you a smile, or says something smartass, you feel as though you've won the lottery.

Once we got to DeAnn's they had to bring her in on a chair because the stairs were problematic, but the room was ready and we got her all situated. She fell asleep almost immediately and she just looked so relaxed and peaceful. She was happy to be home and later told Deann how happy she was to be there. In her bedroom is a photo of all five of the siblings going left to right from youngest (Tina) to oldest (me) with DeAnn, Sonny and Debbie in the middle. Debbie was always the prettiest and she had such long hair. She was quite proud of that hair. So sad to see it gone and her light fading.

I don't have the emotional strength at the moment to recount the last four days but it included very little sleep and my sister DeAnn was worn out. I got home from work yesterday around 7:45 pm and DeAnn called me around 8:30 to say Deb was having trouble breathing, was in a great deal of pain and had not taken her 4pm meds because she couldn't swallow them. Debbie wanted to go to the ER, which you can't do once you sign the hospice papers. I called the on-call nurse who agreed to come out and evaluate Debbie and I jumped in the car, breaking several speed limits to get there. Clearly the folks in front of me on Riverdale Road did not know I had a sick sister.

Bottom line is Debbie was transported back to the hospice last night. DeAnn and I were both in tears because we felt like we had let Deb down. We really thought, that between the two of us, with some major support from Ray and some occasional support from other family members and hospice volunteers that we could cover having someone with Debbie 24 hours a day. DeAnn found out rather quickly how totally consuming and exhausting it is, although she never once complained. For a mountain of reasons, I won't go into, DeAnn and I came to the realization we can't depend on Ray. So our dream of a peaceful sister, dying at home, was in shatters.

You need only to look at my baby bird to tell she can't swallow. Her throat actually has an deep inward indentation. The hospice doctor is putting all her meds in her IV line now so Debbie will be sedated most of the time. There won't be anymore watching "Case Case" at 1 am, or 3am bathroom trips, our laughter or silly comments. It will just be quiet waiting. Just waiting for what we know is coming but wish so very much wasn't. Simply not ready for this.

DeAnn just texted me to say Debbie was having a good dream and was smiling. That made me smile too.

Next post: Where do I start and don't get me started

Two steps forward, three steps back

After the memorial service for my cousin Steve, Tina headed over to the hospice to stay the night with Debbie and I headed home to see my kids and to sleep. I was hopeful Tina would have the same positive experience I had the night before, but unfortunately that was not the case.

Tina said Debbie was up and down all night and neither of them got much rest.

I don't understand the finer points of the tweeking that is going on to get Deb's pain meds at the right level, but I know there's a great deal of back and forth. For example, she was taking the MSContin 3 times a day and using the Dilaudid as her "breakthrough" pain med and that was working pretty well. Then Saturday, when Tina was there they switched the pain meds to 4 times a day and that's when things started to go south. The next modification was to go back to 3 times a day put up the dosage. So far so good on that.

Debbie is sleeping a great deal, but to be honest, I think she may be flat exhausted. When she has a good day, it's as though she has to squeeze every last drop out of it and she ends up wearing herself out. She asked Ray how she could make her lungs stronger and he told her to get up and walk around. As much as she'd like that, she simply doesn't have the energy.

Also, I know she's getting cabin fever, so I emailed Carla, the social worker and ask if she could have a preliminary discussion with the Dr. about when Debbie might be able to go home. Much to my surprise, she said anytime. I'm very happy to report the wheels are in motion and we're hoping to take her "home" to DeAnn's house on Saturday. Debbie's excited but also a little apprehensive because she won't have a cadre of nurses around 24/7 but she will have all of us who have been and will continue to be around all the time. And hopefully, she'll be more relaxed at DeAnn's and will get up and move around, perhaps even go out on the deck. Worse case scenario is she can come back to the hospice if she decides the home care arrangement isn't working.

I can't say enough nice things about the hospice folks. They're ordering a bed, bed tray, oxygen (also portable oxygen) and a wheelchair for Debbie. They have been so encouraging and caring. Knowing they are there as a safety net has really allowed us to keep going and to be there for Debbie. When I got to the hospice today Debbie was sleeping so peacefully. She was reclined in a comfortable position and breathing quietly. She wasn't sitting up fighting the sleep and talking to herself. What a nice change, and she needs the rest. I'm also relieved to know the hospice will be transporting Debbie to my sister's as they said her comfort is the most important thing.

And while I'm handing out warm fuzzies to all the nice folks at the hospice, I have to mention how kind Ms. Andrews at Monroe County DFACS has been in helping me to try and get Debbie's paperwork through on Medicare. Suffice to say, I have homework.

On a sad note, Debbie's next door neighbor at the hospice, B Jay Womack, passed away this evening around 9 p.m. B Jay was only 35 and had non-small cell lung cancer which is very aggressive. When he arrived two weeks ago he walked in on his own power (albeit slowly) but his decline was very swift. He had dozens of friends by to see him on his last day. B Jay was an incredibly nice guy and that's really all I knew about him. I've learned a great deal in the last three hours. For those that are interested, B Jay is the cover story on this week's Creative Loafing here in Atlanta (an alternative newspaper /tabloid). He was a fixture on the Atlanta Music Scene, going by the name Bobby Ubangi. I wish I'd had the time to get to know him better...that's a loss for me. But my focus was on my sister and that's a plus. Godspeed, B Jay.

Next post: What do we do now?